PHOTO BY Darryl James / MPW.59 PHOTO BY Darryl James / MPW.59
  • For the Sake of Charles Lee
  • By Darryl James, Freelance
  • The 59th Missouri Photo Workshop / Chillicothe, Mo.
  • Charles Lee Anderson lies unmoving on an ottoman in the center of his family’s living room in Chillicothe, Mo. His Tay-Sachs disease renders him incapable of producing Hex-A, an enzyme necessary for breaking down dangerous gangliosides in his brain and eventually kills the cells.

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